I am writing this post from the Starbucks in our children’s hospital. For once, I’m not here with Alyssa. She is spending this rainy, Saturday afternoon at a family birthday party while I’m in the city with one of her brothers. He is here to spend a few hours with kids like him, boys and girls who have siblings with…
Most people still don’t understand that epilepsy can be fatal and is actually a leading cause of death. Families like mine are very aware of the statistics. We know that we could lose our children while they sleep and that every seizure could be their last. Madeleine’s death was still a devastating shock though. She was a vibrant 16-year-old with her life ahead of her and a family that adored her.
This morning I will be speaking at a conference for parents of kids with special needs about stress. It’s a hot topic these days. Americans are often described as the most stressed people in the world and parents of kids with special needs or from hard places are often especially overwhelmed. In fact, a study of moms raising children with…
