At some point in the demo, he asked me about the fear of parenting a child you could lose at any moment. I told him that it’s always there, and then, without thinking, I said “that’s why we travel.” When the stress and emotions get to be too much, my husband and I load our kids up in the truck and haul our 5th wheel somewhere. I think it is something of a carpe diem thing for us. We embrace the days we have because we don’t know how many more there will be.
I am a horse trainer’s daughter so the majority of my life has been lived in the country. When I was little, we lived on a ranch with a horse pasture just outside our front door. I had tons of adventures, and several injuries...
continue reading
On Easter Sunday, congregations around the world will come together to celebrate the resurrection. Families will gather and children will hunt for eggs in celebration of our risen King. The empty grave is certainly worth celebrating but...
continue reading
I tell my boys to explore and run and take risks. I want to tell her the same thing but I can't. So, I tell my boys to be brave and I tell her to be safe.
continue reading
I am writing this post from the Starbucks in our children’s hospital. For once, I’m not here with Alyssa. She is spending this rainy, Saturday afternoon at a family birthday party while I’m in the city with one of her brothers. ...
continue reading
Most people still don’t understand that epilepsy can be fatal and is actually a leading cause of death. Families like mine are very aware of the statistics. We know that we could lose our children while they sleep and that every...
continue reading
This morning I will be speaking at a conference for parents of kids with special needs about stress. It’s a hot topic these days. Americans are often described as the most stressed people in the world and parents of kids with...
continue reading
Four times this month, the monster has won. Four times. Four mothers have been forced to bury their small children. Four kids are gone because of a disorder that most of the world still sees as non-life threatening in spite of the...
continue reading
Children are being discriminated against and denied access to special education services they need to because their families are not equipped to fight for their rights. Schools have gone to such extreme lengths to add red tape and made...
continue reading